Well, I had hoped to have better news for you today, but I don’t think a lot has changed since day 38. However, the good news is that if I had to live like this for the rest of my life, I could manage. The bad news is that it wouldn’t be a lot of fun.
On day 47 I can function very well in my own home. I did take a couple of falls here in the house yesterday, but for the most part I do very well. I don’t do heavy housework, but I can certainly keep things where they belong, fix meals, do laundry, etc. AND, I do not feel badly at all most of the time.
I also had our children and grandchildren here during Christmas and had a wonderful time. That was huge considering that I had to cancel on our guests for Thanksgiving, and I couldn’t even sit up at that point.
I still can’t drive, and I don’t get out much and never without Rickey. I did, however, have an adventure yesterday.
Before I knew that I would be sick, I bought tickets for a flight on a WWII fighter plane for any of the family who wanted to go. Our scheduled flight was last night, and the doctor assured me that even without the fixed cabin pressure we would not be flying high enough for that to bother my ear or my balance.
(That wasn’t exactly true, but it was close enough.)
So…I rode to the airport in sunglasses and with my eyes closed since the movement does still really bother me, and two hours or so is a lot of moving. I was able to get into the airport by holding to Rickey’s arm without too much problem. Of course, then I decided to take a rather nasty fall.
My problem is not always balance, and a cane would not help me. That fall showed me that when the world whirls, I instinctively reach out with my hands…thus, I let go of Rickey’s arm and fall. I believe at this point if I don’t have some big improvement soon, I will need to use a walker when I go out so that I can lean into it with both hands braced.
I also still need to look down when I walk. Looking up into the distance is very disorienting.
And I suppose that about sums up where I am on this unknown journey on day 47. I just keep reminding myself that the man who is supposed to know told me that I will be back to normal at some point. I also spend quite a bit of time reminding myself that this is something I need to allow to rest in God’s hands since only He really knows the cause or the outcome.
If you have been given the diagnosis of Permanent Labyrinthitis, I’d love to hear your story. I’m only blogging mine because I have not been able ot find people who are managing with the same thing.