Well, it’s been eighty-one days, and it seems like years! It is very hard for me to think that I have made progress, but I know that I have. It has been five days since since I have had a fall, and that is probably the longest period between falls that I have had. I have noticed that I also don’t seem to walk with my hands in front of me all of the time so that is an improvement as well.
A very old neck injury flared up on me five years ago, and I have nursed it ever since. It has gone crazy on me again and so it is very hard for me to tell if some of my balance problem is coming from that or not, but I do think that is the case. I will see the neurologist on Monday, and hopefully he will order another injection. Then, I will know more.
For now, at day eighty-one I don’t get out much and never alone. Of course, I do not drive, but I do think another few weeks will see me able to drive locally. Until I can turn my head quickly without the world whirling, that won’t be a possibility.
I am extremely thankful for some new friends who contacted me after reading this series of blogs. It is always encouraging to know that you are not completely alone in a problem. We’ve discussed our stories and share what our doctors are telling us.
As for me, I am going to Johns Hopkins in Baltimore in April. I have no doubt whatsoever about my diagnosis, and I have been more than pleased with the doctor I am seeing in Dallas. However, since this is one of the five areas where JH is ranked number 1 in the world, it only makes sense to me to see if there is something I can do to keep from losing another “part,” having now lost a vocal cord and a balance center to either virus, bacteria, or stress.
This will probably be the craziest money I have ever spent, but I just decided that I don’t want any “if onlys.” This way, if something else happens I can tell myself that I did all that I could do.
So…the nutshell…I have a business to promote, towns to promote, and other businesses to promote. Thankfully, we live in the age of fabulous technology that allows me to work from home. I can sound perfectly chipper, while using all of the social media sites, websites, email, etc. However, the real bottom line is that I work in a semi-prone position, and seldom make myself dress and look as presentable as possible (which isn’t much these days) until about the time Ric gets home in the evening. That is about the best I can do on day 81….but that is more than I could do on day 14!!
*Since I began this series of blogs with a title that included the words permanent labyrinthitis, I am going to continue. However, it is my understanding that the labyrinthitis will not be permanent. What is permanent is that the left “balance center” is dead and gone forever. BUT, I am told that I will eventually balance out, so to speak.